We Own the Sky(53)



And then we saw Kirsty again, now with a short crop of blond hair, sitting up in bed and talking to her father on Skype. She had good news, she said, her voice cracking, her eyes filling with tears. “It’s working,” she said, swallowing her sobs, “it’s working, Dad.” Then, Kirsty again, a few years later, whizzing around with a toddler on a roundabout, her husband in the background cradling a newborn infant.

I watched another, the mother of a boy, Ash, who had an advanced brain

tumor. An American, she was filmed in her living room. The lighting was pale, and it was like a front room from the 1950s, pristine but unlived in, and I thought that the boy must have died. But then the filters changed, and it was as if Ash’s mother had been made over, like the before and after shots in a trashy weekly mag. And there was Ash, gorgeous little Ash, running around, looking older, healthier, not knowing or caring why he was being filmed because there were trees to climb and creeks to jump.

It was too good to be true. There would be a catch, a caveat, something that wasn’t obvious at first.

Subject: Re: Jack

Sent: Tue Nov 11, 2014 8:33 am

From: Rob

To: Nev

Dear Nev,

I don’t know if you’ll remember me but we were briefly in touch a couple

of months ago.

I’m  afraid  we’ve  had  some  bad  news.  Last  time  I  wrote  to  you,  Jack was  doing  well  after  his  operation.  Unfortunately,  his  tumor  has  come back  in  a  more  aggressive  form.  Jack  now  has  a  glioblastoma  with additional  seedling  tumors  throughout  his  brain.  The  doctors  have  said there is nothing they can do.

I  have  been  reading  about  Dr.  Sladkovsky’s  clinic  in  Prague  and  I wondered if you could give me more information.

Also, and I hope you don’t mind, but can I ask exactly what treatments

Josh  had?  Not  just  at  Dr.  Sladkovsky’s  clinic  but  everything.  And  to  be clear: Josh had grade 3 glioblastoma multiforme, right?

I  hope  that’s  not  being  too  intrusive.  As  I  said,  I  have  read  your  blog detailing  Josh’s  treatments  but  I  want  to  be  100  percent  sure  I understand correctly.

Sorry  to  be  writing  to  you  out  of  the  blue  like  this.  I  hope  you understand.

Best Wishes,

Rob





box hill

mommy was away for the weekend with work so we took a day trip, out of

london and into the countryside. it was amazing that day, jack, blazing hot, and we drove up the windy road to the top of box hill and then sat at the lookout point and ate sandwiches and jaffa cakes. i remember how you liked to nibble the chocolate, jack, and then scrape the jelly off with your teeth, just like daddy showed you. chocco first then jelly. chocco first then jelly.





15

We could only ignore the phone calls, the emails, the Facebook messages for so long. The people who just wanted to check in because they had heard Jack had been taken ill. The friends who offered to pop around, just for five minutes, to catch up on our news.

Anna suggested sending another email to all of our friends. That way, she said, they would leave us alone. I shrugged, said that I didn’t care either way.

The replies came quickly, filling up our in-boxes. They couldn’t believe it, they said. They were crying, shaking, couldn’t think about anything else. Why was this happening to us, they asked, why oh why? And was there anything they could do? Could they bring us food, help clean the house, anything really, anything, because they just felt so helpless.

And how was Jack? How was he taking it all? Such a terrible thing to happen to a little boy, because they knew how much we treasured him. They knew because they knew how much their own children meant to them. God, they

couldn’t even begin to contemplate what we were going through right now.

Then I saw the status updates on Facebook. Friends, friends of friends, people we didn’t even know so well.

Just received some very sad news...

Devastated, blown away...

Sometimes you get reminders that life is so terribly short. Never forget to hold on to what you have.

I counted: Jack, by proxy, was the recipient of 126 likes. Just as I was thinking how to respond, the posts in my feed were no longer about Jack.

RIP David Frost.

So sad right now: RIP Sir David.

*Crying now* this man was a genius. RIP.

Within minutes, Jack was forgotten. Gutted, they said, absolutely gutted.

Because  Frost/Nixon had always been their favorite movie. Because they don’t make journalists like that anymore, a true gent, integrity to the core, better than Murdoch and his phone-tapping hacks.

“Too soon,” they all wrote. Too soon. Those two little words bounced around in my head. Too soon. He was seventy-four. He’d had his three score and ten.

David Frost had probably spent more time on the toilet than my son had been alive. Too fucking soon?

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