The Things We Cannot Say(2)

It has to be Go-Gurt. It has to be strawberry or vanilla. It has to be in the tube.

At some point recently, someone at Go-Gurt decided to improve the design of the graphics on the tubes—the logo has shifted and the colors are more vibrant. I’m sure no one at Go-Gurt realized that such a tiny change would one day lead to a seven-year-old boy smashing up a supermarket aisle in a bewildered rage.

To Eddie, Go-Gurt has the old-style label, and this new label only means that Eddie no longer recognizes Go-Gurt as food he can tolerate. He knew we were going to the store to get yogurt, then we came to the store, and Eddie looked at the long yogurt aisle, and he saw a lot of things, all of which he now identifies as “not-yogurt.”

I try to avoid this kind of incident, so we always have a whole shelfful of Go-Gurt in the fridge at home. If not for my grandmother’s recent hospitalization, I’d have done this trip alone yesterday when Eddie was at school, before he ate the last two tubes and “we are running a little low on yogurt and soup” became “holy crap, the only thing we have left in the house that Eddie can eat is a single tin of soup and he won’t eat soup for breakfast.”

I don’t actually know what I’m going to do about that now. All I know is that if Campbell’s ever changes the label of their pumpkin soup tins, I’m going to curl up into a little ball and give up on life.

Maybe I’m more like Eddie than I know, because this one small thing today has me feeling like I might melt down too. Besides Eddie and his sister, Pascale, my grandmother Hanna is the most important person in my world. My husband, Wade, and mother, Julita, would probably take exception to that statement, but I’m frustrated with them both, so right now that’s just how I feel. My grandmother, or Babcia as I’ve always called her, is currently in the hospital, because two days ago she was sitting at the dining table at her retirement home when she had what we now know was a minor stroke. And today, I spent the entire morning rushing—rushing around the house, rushing in the car, rushing to the yogurt aisle—all so Eddie and I could get to Babcia to spend time with her. I don’t even want to acknowledge to myself that maybe I’m rushing even more than usual because I’m trying to make the most of the time we have left with her. In the background to all of this hurriedness, I’m increasingly aware that her time is running out.

Eddie has virtually no expressive language—basically he can’t speak. He can hear just fine, but his receptive language skills are weak too, so to warn him that today instead of going to the train station to watch trains as we usually do on a Thursday, I had to come up with a visual symbol he’d understand. I got up at 5:00 a.m. I printed out some photos I took yesterday at the hospital, then trimmed them and I stuck them onto his timetable, right after the symbol for eat and the symbol for Publix and yogurt. I wrote a social script that explained that today we had to go to the hospital and we would see Babcia, but that she would be in bed and she would not be able to talk with us, and that Babcia was okay and Eddie is okay and everything is going to be okay.

I’m aware that much of the reassurance in that script is a lie. I’m not naive—Babcia is ninety-five years old, the chances of her walking out of the hospital this time are slim—she’s probably not okay at all. But that’s what Eddie needed to hear, so that’s what I told him. I sat him down with the schedule and the script and I ran through both until Eddie opened his iPad and the communications program he uses—an Augmentative and Alternative Communication app, AAC for short; it’s a simple but life-changing concept—each screen displays a series of images that represent the words Eddie can’t say. By pressing on those images, Eddie is able to find a voice. This morning, he looked down at the screen for a moment, then he pressed on the Yes button, so I knew he understood what he’d read, at least to some degree.

Everything was fine until we arrived here, and the packaging had changed. In the time that’s passed since, concerned staff and shoppers have come and gone.

“Can we help, ma’am?” they asked at first, and I shook my head, explained his autism diagnosis and let them go on their merry way. Then the offers of help became more insistent. “Can we carry him out to your car for you, ma’am?” So then I explained that he doesn’t really like to be touched at the best of times, but if a bunch of strangers touched him, the situation would get worse. I could see from the expression on their faces that they doubted things could get any worse, but not so much that they dared risk it.

Then a woman came past with an identically dressed set of perfectly behaved, no doubt neurotypical children sitting up high in her cart. As she navigated her cart around my out-of-control son, I heard one of the children ask her what was wrong with him, and she muttered, “He just needs a good spankin’, darlin’.”

Sure, I thought. He just needs a spankin’. That’ll teach him how to deal with sensory overload and learn to speak. Maybe if I spank him, he’ll use the toilet spontaneously and I can ditch the obsessively regimented routine I use to prevent his incontinence. Such an easy solution... Why didn’t I think of spanking him seven years ago? But just as my temper started to simmer she glanced at me, and I met her gaze before she looked away. I caught a hint of pity in her eyes, and there was no mistaking the fear. The woman blushed, averted her gaze and that leisurely journey with her children in the cart became a veritable sprint to the next aisle.